Supporting family’s coping methods

  • Supporting family’s coping methods
    • Parents
        • Developing successful parent-professional partnerships
          • Promote primary nursing; in nonhospital settings, designate a case manager.
          • Acknowledge parents’ overall competence and their unique expertise with their child.
          • Respect parents’ time as having value equal to that of other members of child’s health care team.
          • Explain or define any medical, technical, or discipline-specific terms.
          • Tell families, “I am not sure” or “I don’t know” when appropriate.
          • Facilitate family’s effectiveness in team meetings (e.g., provide parents with same information as other participants).
        • Parents can be encouraged to discuss their feelings toward the child, the impact of this event on their marriage, and associated stresses such as financial burdens. 
        • For most families, regardless of their income or insurance coverage, financial concerns exist. 
        • The costs of caring for a child with special needs can be overwhelming.
        • One or both parents may have to sacrifice job opportunities to remain close to a medical facility or to avoid losing insurance benefits. 
        • Numerous volunteer and community resources are available that provide assistance, rehabilitation, equipment, and funding for a variety of health problems. 
        • National and local disease-oriented organizations may provide needed assistance and support to families that qualify.
      • Parent-to-parent support
        • Just being with another parent who has shared similar experiences is helpful. 
          • It may not need to be a parent of a child with the same diagnosis, because parents in the process of adjusting to a child with special needs—or finding respite services, educational or rehabilitative services, special equipment vendors, and financial counseling—tread a common path.
        • Another strategy is to ask another parent to talk to the parents. 
          • The nurse should seek out a parent who is a good listener, has a nonjudgmental approach to differences in families, and possesses good advocacy and problem-solving skills.
        • Parent groups are rich resources for information. 
          • Nurses can assist in starting a group by identifying one or two parents as leaders; sharing with them the names, telephone numbers, and addresses of other families who have expressed both an interest and a willingness to release their phone number and address; and guiding them in how to initiate a first meeting.
      • Advocate for empowerment
        • Nurses can advocate for methods that foster opportunities for parent empowerment.
          • Nurses can suggest reimbursement for travel and child care plus stipends to enable parents’ voices to be heard at meetings and conferences.


More Posts

Aspirin overdose

Aspirin is a nonsteroidal anti-inflammatory drug (NSAID) used to relieve mild to moderate aches and pains, swelling, and fever. Aspirin overdose occurs when someone accidentally

Pulmonary edema

Pulmonary edema is an abnormal buildup of fluid in the lungs. This buildup of fluid leads to shortness of breath. Causes Pulmonary edema is often